November 23, 2006 at 4:19pm Robert Matthew Carroll-Stamp died.
That morning the doctors told both Gina and I that the Cardiologist did another echocardiogram and found that Robert’s heart function was worse then the day before. The doctors explained to us that his heart was failing him. The Cardiologist said that the medication Robert was getting for his heart was at its maximun, any more they felt would just damage the heart more. The Cardiologist was concered that if his heart were to fail that there is not much more they could do.
The doctors also explained to Gina and I that Robert was having prolonged seizures lasting up to 15 minutes long that were manifesting physically. This was not focused on one section of his body anymore, but all over. Robert’s mouth, tongue, eyes, eyelids, neck, right arm, and right leg would all move independently for a long period of time. The Neurologist told Gina and I that Robert was having almost continuous seizures without any physical signs. Robert was no longer responding to the 3 different seizure medications he was receiving. The Neurologist told Gina and I that Robert’s brain would not respond to anti-seizure medication because the amount of damage was too great. Gina and I were told that Robert might survive a few more hours to a few more days, but doctors were expecting only a few more hours. Gina and I decided that it was time. After the family had their chance to say goodbye, Gina and I held our son one more time before we withdrew support.