Gina and I have spoken to the Neurologist and he has informed us that Robert is having an increased amount of seizures. The EEG showed also that these were occurring throughout the entire brain. The left frontal lobe had a lot of activity and is not responding to medications meant to stop the seizures. Later this morning the right side began to be non-responsive to medication also. The Neurologist also gave some plan and simple facts. He felt that Robert has received substantial brain damage as a loss of blood and subsequently loss of oxygen to the brain. He feels that the continuation of the ECMO machine is rather futile. He said that he was in this morning and tried some basic reaction and reflex tests and Robert was completely non-responive. The Neurologist said he tried as best he could to make Robert uncomfortable and he just gave no response. The Neurologist made it clear that although Robert is sedated he should have some reaction.
Robert’s pupils since yesterday were non-responsive to light changes. The Neurologist said that this is only because of the brain damage he has received. The Neurologist said the heart surgeon would like to keep Robert on the ECMO for one more day as he felt the heart may still improve. Although the Neurologist feels that even if the surgeons could get Robert’s heart working great his brain would not recover. It seems at this point I really have to let my son go and stop his now unconcious but constant suffering. Although Robert is thought to at this point to feel no pain I feel these seizures as a type of suffering.
From what Gina and I have discussed we feel that Friday 11/24 we will turn off the ECMO unless God willing some improvements happen.
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